Due to the complexity and multiplicity of ‘challenges’ that people with intellectual disability can experience in their everyday lives, it is not uncommon for them to be involved with multiple service systems (either voluntarily or involuntarily). This can present a specific set of challenges, particularly relating to:
- Understanding support services and systems
- Understanding the relationships between systems
- Finding appropriate support and meaningful connection outside of service systems (where system involvement dominates)
- Living with the consequences of poor communication between involved services – ‘falling through the gaps’
- Living with reduced self-determination due to heavy involvement of services (particularly if best practice around supporting decision making and sharing information between services fails to be strictly observed)
- Navigating services and systems that are ‘siloed’ into categories of support, rather than having opportunities to receive holistic support from fewer agencies or from the wider community (which would decrease life complexity and enhance social inclusion)
- Living with the consequences of injustices due to incompatibility between systems (for example, child protection law does not include the need to uphold the human rights of people with a disability, and the legal system cannot provide the flexible approaches available through community-based disability services).